From Me and Mine to You and Urine!

I have to be all stealthy today in writing a post as I’ve been quite busy at work  but don’t want to neglect my little blah blah blog!

Let’s talk about Pee pee!  I cringe every time I think about my bladder…  Oh those days when my Urethra Franklin is singing the blues!  I’m talking Interstitial Cystitis!  How Ironic is it that I’ve been bladder pain free for two years and as soon as I mention it to my Rheumy, it rears it’s ugly…well… it starts acting up!

I get the trickles.  Those of you in the know- know what I mean!  Can’t sneeze or cough without crossing your legs?!  that sort of thing!  Or the two second warning that comes and lets you know- hey!  you have to pee…..RIGHT NOW!!!!  now!!!! RUN!!!!

I’m not sexually active (it’s my choice…really….no…. really… it’s my choice. honest!) and this has cut down on the bladder and pee shoot pain significantly- so I’m not sure why It’s spasming now.  I even wondered if it was kidneys stone.  Whatever it is- it’s   about as much fun as tractor full of chickens crashing on the highway.

I mentioned my rheumy-  she’s new to me.  I can’t decide if i like her fully- but I know i like her better than the previous one I tried out-  Well anyway, she told me that interstitial cystitis wasn’t a Lupus or Sjogrens thing- but a Fibro thing.  Ok…well, i have all of those- does it matter?  it’s beside the point and in spite of the point.

So, I’m trying to be good and drink lots of water (bleck!), taking those lovely little pills that turn your pee orange  ad avoiding caffeine (kind of), sweets, (kid of) and other triggers.  What’s the point of that tho- really!!!  When I’m miserable, caffeine keeps me going and I deserve sugary sweets for having to put up with this! ding dang it!  But seriously, I’m trying to be good.  It’s slowly easing up.

You know- the comedy of all of this just really strikes me.  It’s almost like there is a grand big Being that is overlooking us and laughing- ha ha ha!  look at that little red headed one!  She has Lupus-  let’s give her Sjogren’s and then add some Meniere’s!  Watch this-  we’ll weaken her bladder and cramp it up  and watch her stry to dizzily hobble run to the bathroom!  $5 bucks says she’ll piddle in her panties!

I know this whole bladder and pee hole thing is kid of a mystery- but dang if it doesn’t knock the pi$$ out of you!  ha!

So here we go…

I’m a trooper.  Having been diagnosed with my first autoimmune disease over 20 years ago, I’ve sort of learned to live with my diseases.  Something that has become more and more difficult as I’ve gotten older.  I get angry…and you know what?  It’s perfectly ok.  So, I figured there are others out there who get angry and sure- we all want to be comforted but isn’t there also comfort in knowing that you aren’t the only one pissed off for being sick?!  Pissed at your doctors, your families, yourself and life in general.  It happens and I believe anger is a natural and valid emotion under such circumstances.  We all want to be rosy and optimistic- strong for the loved ones in our lives, but you know what?  Sometimes you have to be real and allow yourself the luxury of getting butt hurt crazy mad.

I am a professional adult female in my 40’s.  I have friends, a healthy social life, a job I like and want to keep (tho it’s getting physically more difficult) and am, for all intents and purposes normal.  I have Lupus, Raynaud’s, Sjogren’s, Fibromyalgia, and Meneire’s and I am declaring Guerrilla Warfare on Chronic illness.  This is where I will vent and share- a safe place for you to do so as well.

And I can’t figure out for the life of me why my title only has one r in Guerrilla.  Grrrrrr!